Category Archives: story

Our founder Eileen Lodge aged 94.

Our founder Eileen, aged 94 years,  having tea and cake in her home in Kathmandu yesterday (18th June 2017), with Mike Winterburn, chairman of the board of directors of NLT Ireland.
Eileen Lodge, had worked in Nepal with those affected by Leprosy since the early 1950s. Nepal Leprosy Trust (NLT) was established in 1972 in Kathmandu. Many, many people have benefited and continue to benefit greatly as result of this wonderful lady! If you wish to support our mission contact us on info@nlt.ie or click here

Eileen Lodge and Mike Winterburn in Kathmandu June 2017
Eileen Lodge and Mike Winterburn in Kathmandu June 2017

HOPE: It’s not just a buzzword

Article and photos by Sarah Winterburn.

hope-is-not-a-buzzword

Late one evening in July, I found myself descending rapidly in an airplane over the Kathmandu valley. The city looked totally unlike any I had seen before. Walking out onto the heated street, the life of the place struck me. People everywhere. No surface seemed untouched. As I travelled south, rural farmland replaced crowded cityscape – rice paddies and dirt tracks.

WELCOME TO NEPAL
How did I end up here? After a lifetime of hearing stories about Nepal from my parents, who spent the first years of their married lives there, I had been given the opportunity to visit. I would be staying at Lalgadh Hospital – the busiest leprosy hospital in the world – set up by Nepal Leprosy Trust (NLT), a Christian organisation inspired by Jesus’ compassion to serve the poor and sick. Their aim is to empower those affected by leprosy and other disadvantaged people.

Leprosy destroys the life of a patient both physically and socially, so NLT focuses on two primary aspects of the rehabilitation. First, they must deal with the physical illness… Read the full article here

Mother and Baby

With the birth of two wonderful little girls in my extended family this week in Ireland I am reminded of the mother and baby ward in Lalgadh Leprosy Hospital in southern Nepal.

It's a boy, 3kg photo by Yvonne Simmonds.
It’s a boy, 3kg photo by Yvonne Simmonds.

This last week in February there have been 3 births in Lalgadh, two girls and a boy. All going well the mothers will return home with their newborn baby about 5 or 6 hours after birth. The normal birth figures in the hospital are an average of two a month.

This low figure is due to three things:

1. the specialised ward is a new facility within the hospital compound

2. most mothers have their babies at home and continue with normal daily life

3. the hospital is situated in rural Nepal and travelling long distance, at short notice, usually on foot is not ideal during labour.

This trend is slowly changing as a result of the Village Alive Program which includes training of Rural Health Champions (RHC).

The RHC’s are women working on a voluntary basis and have been selected by their respective villages. These women take part in efforts to control diarrhea, vomiting, malnutrition, malaria, and tuberculosis and referral advice when required. Most of them were illiterate, but now function as health volunteers, measuring blood pressure and performing examinations, including examination of pregnant women. They are also able to recognise danger signs and advise to move pregnant women to hospital if necessary.

Photo by Yvonne Simmonds
Photo by Yvonne Simmonds
In labour, photo Yvonne Simmonds.
In labour, photo Yvonne Simmonds.

 

Mother and baby photo by Yvonne Simmonds.
Mother and baby photo by Yvonne Simmonds.

Video – Sarita’s Story

When I visited Lalgadh Leprosy Hospital for Easter 2014 I was blessed to meet some beautiful people. I know I have made friends for life as a result of my time spend there. One of the ladies I met was Sarita, she was part of the outreach team who travelled with us to the remote villages. On these trips she preformed many tasks, one of which was introducing us to the villagers, helping to translate and share their stories.

I also spent time with her in the small jewellery making workshop which she manages. She provides training and support for people in a similar situation to her own. Sarita, seen here on the left,  is a very warm, confident and outgoing person but this was not always the case.

Click on this video link to hear her story:  http://vimeo.com/65224739

workshop loRes

 

Demolishing stigma

Stigma – A mark of disgrace associated with a particular circumstance, quality, or person.

Oxford dictionary

“It all began with a small patch on my skin that didn’t feel anything, but now I feel tingling in my toes and feet.”

Leprosy is caused by bacteria, mycobacterium leprae, affecting the nerves in the skin, face, hands and feet.

“As time went by my hands and feet would get injured. I feel no hurt.”

Leprosy can permanently damage the nerves so that they feel no pain, hot or cold, just like an anaesthetic.

“Cuts get infected, and ulcers develop. I feel no discomfort.”

The patient feels no pain, injuries are not rested and may get infected badly.

“My family don’t like the disease, they hide me, and make me live alone. I feel loss.”

Stigma can begin between husband and wife, parents and children.

“My children are discouraged from going to school. I feel shame.”

The wider community can affect the families of leprosy sufferers.

“We cannot go to the well with everyone else, our neighbours shout at us. I feel anger.”

Fear and misunderstanding in the community can lead to separation.

Lalbusty Tulashi – at the top of the hill – this is the only water point and  pump in the village.
Lalbusty Tulashi – at the top of the hill – this is the only water point and pump in the village.

“I’ve lost my job, as my boss does not want me around. I feel hunger.”

Economic loss can cause the family great hardship.

“I went to the hospital at Lal Gadh Leprosy Services Centre (LLSC), the doctor tells me I have leprosy. I feel despair.”

The actual diagnosis can be the most painful part, for patient, family and community.

Ashok Shrestha, OPD Lalgadh Leprosy Services Centre
Ashok Shrestha, OPD Lalgadh Leprosy Services Centre.

Mr Mohad Aniul_shame_107

 

 

 

 

 

 

 

“The nurses take care of my wounds and ulcers and give me medicine. I feel compassion.”

The secondary effect of having damaged nerves is infections, this is what most people see as leprosy, the leprosy bacteria is treated by antibiotics.

“I sleep in a hospital bed and have a full meal. I feel safe.”

Often patients may be malnourished and need to be admitted as in-patients.

“The hospital staff hold my dry hands in theirs and make me laugh. I don’t feel untouchable.”

Stigma begins in the heart, and we overcome it by the way we live, by the example we show.

“I am much better now, so I can go home, I meet other leprosy patients in my area. I feel a new community beginning.”

Leprosy patients form self-help groups (SHG), to look out for each other. Men and women, young and old, Muslims, Christians and Hindus of different castes all sit together and share their struggles, offer advice, laugh and cry, touch and comfort each other, building self-esteem and confidence.

“In the SHG we can start to learn again, to read and write, to understand health issues. I feel I am growing.”

Self-help groups receive support from LLSC with adult and health education.

“The SHG begins a monthly savings scheme. I feel hope.”

Self-help groups receive seed capital from LLSC and encourage leprosy patients to budget and save.

“I start a small business and earn money to support my family. I feel pride.”

The savings scheme can lend money to its members to start an enterprise to break the downward cycle of poverty.

Monthly savings scheme helps me to start a small fruit and veg market.
Monthly savings scheme helps me to start a small fruit and veg market.

“My children respect me again, and my spouse welcomes me in the home. I feel love.”

The family often adapts and heals remarkably easily.

“My children can return to school. I feel they have a future.”

Public health education, through street drama or discussion provided by LLSC can help bring down barriers in the community.

“The SHG invites LLSC to start a Village Alive Programme in our village. I feel I am becoming a leader.”

The Village Alive Programme is an intensive three year health, education and development programme, that the self-help group initiates with the support of LLSC and agreement of the local community.

“Our village is doing well, the community looks to me to help and guide them. I feel no disgrace.”

Mr Mohad Aniul.
Mr Mohad Aniul.

Demolishing stigma by Nepal Leprosy Trust.

All the above quotes are drawn from leprosy affected people in Nepal and this story highlights a common journey of recovery for them as enabled by NLT.